Patient Work
Patient work is the labor that patients do to access health information and services, managing symptoms of illness, and managing treatment for illness. Excessive patient work has negative impacts on individuals (e.g., decreased quantity and quality of life), populations (e.g., worsened health outcomes), and societies (e.g., broad economic and social effects). Research on patient work and solutions to address it are emerging across multiple disciplines, but are hindered by the invisibility of patient work and the lack of integrated research and interventions across disciplines, domains and scales.
Our translational team researches and intervenes to address patient work using a transdisciplinary, community-engaged approach. Specifically, we have gathered interdisciplinary academic and community members and organizations together to carry out projects to address patient work at the micro-level among specific populations (e.g., chronic disease patients and members of historically marginalized racial groups accessing health services). We also make patient work visible at the macro level by integrating multiple streams of research and developing novel techniques to make patient work and its effects on patients, populations and society visible, thus addressable. Currently, we are seeking partners to develop translational projects and address this pressing health problem at the micro and macro scale.
Our team leads
Kathleen Pine, PhD
Co-Lead
Associate Professor
Kathleen Pine is an associate professor in the health care systems neighborhood here at Arizona State University's College of Health Solutions. She is an interdisciplinary social scientist working at the intersection of human centered computing, including human-computer interaction, computer-supported cooperative work and health informatics; management and organization studies; and science and technology studies. Her research centers on data practices: the situated social, technical, and organizational practices through which data are created, managed and deployed, as well as the social and organizational implications of digital information technologies in the realms of health care and community health. She has a PhD in social ecology from the University of California, Irvine and worked previously as a postdoctoral research engineer in the user experience research group at Intel Labs, as an assistant project scientist in the Department of Informatics at the University of California, Irvine.
Elizabeth Kizer, DrPH
Co-lead
Associate Teaching Professor
Elizabeth Kizer is an associate teaching professor focused on teaching undergraduate classes in the health care administration and policy program (previously named science of health care delivery). Her teaching interests include research methods, data analysis (biostatistics and qualitative), public/population health, public mental health and process engineering. Her mixed-methods research focused on the use of community health assessments and community health improvement plans in the development and implementation of environmental and policy-level initiatives. She facilitated a community-based participatory research initiative in a rural community to assess and improve the nutrition environment. Specifically, she examined whether a geographically dispersed backyard garden program impacted the rural food environment by increasing the availability of fresh foods. Presently she is using a community-based participatory research framework to improve social determinants of health support for marginalized populations in a community health care setting.
Samantha Whitman, MS
Project Coordinator
Sam is a passionate qualitative researcher and social scientist investigating how to enhance health outcomes and the patient experience, especially for those living with chronic illness. Her research spotlights patient narratives managing complex care coordination in order to shift understanding of disease and treatment from the perspectives of patients themselves. She leverages interdisciplinary expertise spanning human-computer interaction, health services research, medical sociology, and science & technology studies to craft impactful stories illuminating opportunities to influence the design and implementation of patient-centered technologies, care coordination strategies, and delivery innovations that enrich experiences.
Where we work
ASU California Center
ASU Tempe Campus
Native Health
HonorHealth
Digital patient Communities
1111 S Broadway, Suite 100
Los Angeles CA 90015
Tempe AZ 85281
4041 N Central Ave
Building C
Phoenix AZ 85012